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I Have EDS: When Should I Get a Mobility Aid?

July 22, 2018 By Ashley

I got a great question from a reader: Question: “I have EDS: When should I get a mobility aid? I feel like it’s my ankles and feet that hurt so bad. I can almost not move after a day of walking. If I got a walker that I could use to sit whenever I need […]

Filed Under: Health 1 Comment

Guest Post: Meet B!

February 15, 2018 By Ashley

It’s time to meet another member of our community! We are all different, and yet, so many of us are the same. See if you can find a piece of your story reflected in “B’s,” a Canadian living with Ehlers-Danlos Syndrome (EDS). The Malleable Mom: Tell us a little bit about yourself! B: I am […]

Filed Under: Health 2 Comments

What Causes Constipation in EDS?

January 22, 2018 By Ashley

I’ve had shit for brains lately. Not just from the chronic Ehlers-Danlos Syndrome (EDS) brain fog and Mom-brain of raising two teens (and teens with EDS at that), but “I am sick and tired of dealing with all of our chronic constipation and I need to get to the bottom of why” brains. I was […]

Filed Under: Health 14 Comments

Guest Post: Meet Bella!

December 14, 2017 By Ashley

From time to time I like to interview people in our tribe, so that you can learn more about what it’s like for other people living with chronic illness or disability. Recently, I had the pleasure of interviewing Bella, a military wife and mother living with Ehlers-Danlos Syndrome. The Malleable Mom: Can you tell us […]

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Fascia: The Key to Understanding Chronic Pain

December 8, 2017 By Ashley

Have you ever flipped through the channels, and stopped dead at something? This woman was lecturing on my local PBS station, and what she was saying about fascia caught my attention so quickly, I nearly got whiplash. Fascia is a web of connective tissue that runs throughout our body, and until very recently, we didn’t […]

Filed Under: Health 23 Comments

Why We Heart Our Posture Pump®

October 6, 2017 By Ashley

It’s been a while since I’ve checked in with you. Mostly because I’m miserably sitting here typing with one hand, and it’s hard. Shoulder surgery suuuuuucks.  I can say that with some authority, because in the last 24 months, I’ve had both brain and spine surgery, and they were cake walks compared to this. The […]

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What is a Sleep Study Like?

August 22, 2017 By Ashley

Let’s talk about sleep studies: have you ever had one? I did a sleep study about 20 years ago, and it showed that I had very limited amounts of restorative sleep, which they attributed at the time to my having “fibromyalgia” and trying to put me on a number of low dose antidepressants to get […]

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How to (Un)Straighten a Neck: the Posture Pump®

July 16, 2017 By Ashley

Freeze. Are you reading this on your smartphone or laptop? How is your head positioned? (Looking down, right?) You aren’t alone. The Washington Post reported that over half of the adult population is guilty of behavior that leads to the growing problem known as “tech neck,” and it’s getting worse every year. I began my […]

Filed Under: Health 9 Comments

How to Reduce Pain from an Ear Infection

April 6, 2017 By Ashley

We have a Rubber Duck down today – #TheStretchySon has a double ear infection and a high fever. He is the picture of misery. It is clearly bacterial, so I had no problem starting amoxicillin. But I am also using this extremely effective trick for clearing out the infection and most important, PAIN CONTROL. Parents […]

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How to Handle College and Chronic Illness

March 9, 2017 By Ashley

Emily speaks for me, and for a lot of people. College is often a huge transition out of our parents’ home and into our independent lives, which can be stressful. For those of us who are chronically ill, or worse, are yet undiagnosed, college and dorm life can seem daunting. But I don’t have all of the […]

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