It’s time to meet another member of our community! We are all different, and yet, so many of us are the same. See if you can find a piece of your story reflected in “B’s,” a Canadian living with Ehlers-Danlos Syndrome (EDS). The Malleable Mom: Tell us a little bit about yourself! B: I am […]
What Causes Constipation in EDS?
I’ve had shit for brains lately. Not just from the chronic Ehlers-Danlos Syndrome (EDS) brain fog and Mom-brain of raising two teens (and teens with EDS at that), but “I am sick and tired of dealing with all of our chronic constipation and I need to get to the bottom of why” brains. I was […]
Guest Post: Meet Bella!
From time to time I like to interview people in our tribe, so that you can learn more about what it’s like for other people living with chronic illness or disability. Recently, I had the pleasure of interviewing Bella, a military wife and mother living with Ehlers-Danlos Syndrome. The Malleable Mom: Can you tell us […]
Fascia: The Key to Understanding Chronic Pain
Have you ever flipped through the channels, and stopped dead at something? This woman was lecturing on my local PBS station, and what she was saying about fascia caught my attention so quickly, I nearly got whiplash. Fascia is a web of connective tissue that runs throughout our body, and until very recently, we didn’t […]
Why We Heart Our Posture Pump®
It’s been a while since I’ve checked in with you. Mostly because I’m miserably sitting here typing with one hand, and it’s hard. Shoulder surgery suuuuuucks. I can say that with some authority, because in the last 24 months, I’ve had both brain and spine surgery, and they were cake walks compared to this. The […]
What is a Sleep Study Like?
Let’s talk about sleep studies: have you ever had one? I did a sleep study about 20 years ago, and it showed that I had very limited amounts of restorative sleep, which they attributed at the time to my having “fibromyalgia” and trying to put me on a number of low dose antidepressants to get […]
How to (Un)Straighten a Neck: the Posture Pump®
Freeze. Are you reading this on your smartphone or laptop? How is your head positioned? (Looking down, right?) You aren’t alone. The Washington Post reported that over half of the adult population is guilty of behavior that leads to the growing problem known as “tech neck,” and it’s getting worse every year. I began my […]
How to Reduce Pain from an Ear Infection
We have a Rubber Duck down today – #TheStretchySon has a double ear infection and a high fever. He is the picture of misery. It is clearly bacterial, so I had no problem starting amoxicillin. But I am also using this extremely effective trick for clearing out the infection and most important, PAIN CONTROL. Parents […]
How to Handle College and Chronic Illness
Emily speaks for me, and for a lot of people. College is often a huge transition out of our parents’ home and into our independent lives, which can be stressful. For those of us who are chronically ill, or worse, are yet undiagnosed, college and dorm life can seem daunting. But I don’t have all of the […]
I Think I Have EDS – What Do I Do Now?
You Are Not Alone You or a family member are newly diagnosed with Ehlers-Danlos Syndrome (EDS), or you suspect you have it based on the following criteria. You’re in pain. You’re overwhelmed. Likely, you’ve been trying to find answers for months or even years. You’ve probably “tried everything,” to feel better. You might have even developed a […]
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