A Letter to My Mom on Mother’s Day, by the Durable Daughter
Hi! This is the eldest rubber duck. I have been asked to do the great honor of writing a blog post! I’m only 11 so just bear with me. I guess that I am here today to tell you what it’s like to be a kid like me, a kid with EDS, what I think of it, and everything else that’s expected of a tween older sister.
EDS can be really stressful. I often wish that none of us had ever been born with it. But it makes us who we are. And I believe that without it, we wouldn’t be the strong family we are now. I have learned to live with my differences. To know that I’ll never be like my friends, and that’s OK. To wear my bright blue Kinesio tape with dignity. And I have many people to thank for helping me reach where I am now.
One of those people is my mom. I don’t know where I’d be without her. She has helped me through so much I don’t even know where to start. She is always there for me and I hope that someday I can be there for her. I know its mother’s day, so I am going to take the time and properly thank and appreciate moms.
To all of the moms following this blog I have one thing to say to you; you rock!!! You really do. I don’t even know some of you, but I already know that you are awesome! All moms are. You have committed yourself to not only growing, but raising and loving a child. No matter their appearance or condition. You strive to understand and help your child in the toughest times. You try to be there for them. You’re their big super hero in an apron. And that’s all we kids need. Someone who is always going to pick our side. Someone to cry to, someone to love, someone to have a moment with. We love you just the way you are. Don’t try to be perfect. You’re already that way. Be yourself, that’s all we want.
Okay, dry your tears. I need to move on. On top of having EDS, I am also a big sister. And though he may say that he hates me, he wishes I was never born, and I’m the meanest sister in the world, I know my little brother loves me from the bottom of his big, soft heart. Being a big sister is really hard. And I admit it; I am sometimes the nightmare big sister you see in movies. I have a lot of spite, and I need to use it somewhere. Not at school, I’d get in trouble. Definitely not on my parents. So, unfortunately, my brother ends up getting all of the rude comments. And I often forget that he takes thing very personally. And it‘s not his fault. We are both growing and learning. We are in this together. I am very lucky to have a brother like him. And today, I’m making room for him under the spotlight along with all of you incredible moms. He deserves it. My brother has always been the sweetest, kindest brother. And I try to be nice to him. And when I see other people’s brother-sister relationships, I feel very lucky to have such a relative. All he wants to do is play with me. And all I do is slam doors in his face. I really start to feel bad. Imagine always wanting to be with someone you love, but always being shut out. I try to walk around in other people’s shoes. His shoes hurt.
EDS has really affected my life. One of the most painful things for me is being different. I was not as strong as I used to be once the symptoms started kicking in. I was weak and ignorant and scared. I had to use a weird lumbar support and I could no longer participate in my favorite field day event; tug-of-war! I advise to anyone who is experiencing an EDS diagnosis, or any related diagnosis, to take this as an opportunity to not only become strong and relatively normal again, but to be even stronger. My physical therapist, (who I’ve had since 3rd grade) also has joint problems. But she is so strong she’s kicking a** like nobody’s business. I want to be like her. And I can. That’s what I keep telling myself when I drag myself downstairs every morning at 6:30 to do my PT. (To be fair I watch TV while doing so). Because I’ve been working so hard, I can do a side plank for over 2 minutes! Just think of where I’ll be if I keep this up for another 2, 3, 4 years! That’s where you could be too.
Thanks for listening!