Hey! Are you a Super Woman? Me neither!

My two kids and I live with chronic pain from hypermobile Ehlers-Danlos Syndrome. Here is where I share all of our wacky adventures with a dash of wisdom and a shot of vodka. I don’t take myself too seriously, and you shouldn’t either! If you live with chronic illness, have kids, or believe that pain is best managed by laughter, then this is the place for you. I talk about health, being a good enough parent (no helicoptering allowed), my mad skills as a suburban survivalist, and anything else that is rattling around in my drug-addled brain (curse you, Topamax!) You can check out some of my previous ramblings below.

Welcome! I’m glad you are here.

Recent Posts

How to be a Power Patient

Most chronically ill people don’t know how to be a power patient – it’s not instinctive, or it’s been beaten out of us from years of depressing results. For us, the experience of going to doctors for answers is usually the same: we stumble our way through our origin story, trying to piece together the […]

Guest Post: Meet B!

It’s time to meet another member of our community! We are all different, and yet, so many of us are the same. See if you can find a piece of your story reflected in “B’s,” a Canadian living with Ehlers-Danlos Syndrome (EDS). The Malleable Mom: Tell us a little bit about yourself! B: I am […]

What Causes Constipation in EDS?

I’ve had shit for brains lately. Not just from the chronic Ehlers-Danlos Syndrome (EDS) brain fog and Mom-brain of raising two teens (and teens with EDS at that), but “I am sick and tired of dealing with all of our chronic constipation and I need to get to the bottom of why” brains. I was […]